Communautés de longue durée, d'après-vacances et de maladies chroniques

Journée de sensibilisation à Long Covid 2025 :

(Source: patientresearchcovid19.com)
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Communautés de longue durée, d'après-vacances et de maladies chroniques

Support groups are important to navigate through chronic illness, but once they reach a certain size and/or are run by admins that lost hope of recovery, the negative effects often outweigh the positive ones and it is more beneficial to leave a toxic environment, because as Jed Bennett calls it – misery often loves company.

One of the support groups that we recommend, because they value the same principles as we – scientific, fact based information and positive communication is the Long Covid Apheresis Community (lcacommunity.org). Our Co-founder Markus Klotz has founded the predecessor organisation of the Long Covid Apheresis Community – the former Apheresis Association. You can find an article about this here. 

Unfortunately many support groups have outgrown the size where they can be useful to members. Admins and members that already have given up hope and suppress positive information are likely not good company as Jed Bennett describes in this little mini-series of three short videos: Mini-series with Jed Bennett in our blog

Two studies that hint to why such support groups are prone to become this way, are about the lack of serotonin (and potentially dopamine) and cortisol, which in combination or on their own will affect the psychological wellbeing of a person massively.

A person in front of a keyboard affected by the above and with the power to decide about what is published or not – we leave the result to your imagination. 

Below you find further information about a project of the Long Covid Community, which our Med Team supported – an Apheresis Resource for treating doctors of PCS/PVS/CI patients:

Ressources pour les médecins traitants des patients atteints de PCS/PVS/CI

Notre équipe médicale soutient le travail de la communauté des maladies chroniques, des maladies de longue durée et des maladies post-vacances.

Last year, many of our patients postponed their treatment decisions and only arrived this year. As early treatment is very beneficial, this did not sit well with us – especially as most of the time the reason for postponement was a local health professional who did not have the in-depth knowledge to support them. This is why we have supported the community with a project to gather and share knowledge about (H.E.L.P.) apheresis for medical professionals:

Medical Professionals get full and free access to LCA Med with all it’s content. Our Medical experts and medTec experts have contributed to this project:

• Données actualisées des cliniciens sur les résultats du traitement, les contre-indications potentielles, les risques et les effets secondaires
• Formations, cours et manuels
• Comparaison de toutes les formes d'aphérèse existantes pour Long Covid
• Aphérèse pour Long Covid Medical FAQ avec possibilité d'ajouter des questions
• Guide des soins préalables et postérieurs pour les patients ayant recours à l'aphérèse pour le Long Covid
• Accès à un soutien direct et personnel pour les médecins (diagnostic, co-traitements)

Dr. Irina Pavlik Marangos has extensive experience in treating Long Covid, Post Vac and Chronic Illnesses patients with Combination Therapy including Help Apheresis and  co-treatments like IV treatments, Medication protocols, Hyperbaric Oxygen and Cryo treatments. She has been working almost a decade in medical research before returning to the frontline as a treating clinician.

Silke Fischer is one of the leading technical experts in Apheresis for Long Covid.  After over two decades in the industry, one decade at B.Braun Medical, she now supports projects internationally.

Elle a formé la majorité des médecins et infirmières de Help Apheresis à Chypre, en Suisse et en Allemagne et son équipe a traité des centaines de patients en aphérèse Long Covid.

Elle est experte en applications techniques et formatrice certifiée, et a participé au développement de machines d'aphérèse et de dialyse. 

Markus Klotz has founded the predecessor organisation of the Long Covid Apheresis Community (you find their website here) – the former Apheresis Association. You can find an article about this here

Si vous êtes un professionnel de la santé, rejoignez gratuitement le site LCA Med Resource : 

LCA-MED.ORG 

Documentaire d'ARTE TV "Long Covid - Guérir à Chypre".